Comments on: About Me & My Blog http://avthompson.wordpress.com Just another WordPress.com weblog Wed, 25 Nov 2009 09:16:52 +0000 http://wordpress.com/ hourly 1 By: avthompson http://avthompson.wordpress.com/about/#comment-491 avthompson Fri, 20 Nov 2009 03:54:23 +0000 #comment-491 Hi Cat! The only issue with yoghurt is that there are active bacterial cultures. As the bacterial cultures in fructmals' bodies have been overstimulated - sometimes for years - with fructose they shouldn't have been dealing with, the idea is that adding MORE bacterial cultures is the LAST thing needed! I have been experimenting myself with bringing yoghurt into my diet occasionally. I have been careful to choose brands that list "active bacterial cultures" as the LAST ingredient, and contain NO prebiotics. So far my reactions have been moderate to non-existant! YAY! Each person must test themselves and find their own tolerance. Keep us posted! Ariana Hi Cat!

The only issue with yoghurt is that there are active bacterial cultures. As the bacterial cultures in fructmals’ bodies have been overstimulated – sometimes for years – with fructose they shouldn’t have been dealing with, the idea is that adding MORE bacterial cultures is the LAST thing needed!

I have been experimenting myself with bringing yoghurt into my diet occasionally. I have been careful to choose brands that list “active bacterial cultures” as the LAST ingredient, and contain NO prebiotics. So far my reactions have been moderate to non-existant! YAY!
Each person must test themselves and find their own tolerance.
Keep us posted!

Ariana

]]> By: avthompson http://avthompson.wordpress.com/about/#comment-488 avthompson Fri, 20 Nov 2009 03:32:29 +0000 #comment-488 Thank you! RL complications have been keeping me away lately, and I apologize for my tardiness. I appreciate your good words! :) Ariana Thank you!
RL complications have been keeping me away lately, and I apologize for my tardiness. I appreciate your good words! :)
Ariana

]]> By: avthompson http://avthompson.wordpress.com/about/#comment-466 avthompson Mon, 09 Nov 2009 07:04:41 +0000 #comment-466 Yep, sounds familiar Elizabeth! Glad to meet you! There seem to be a lot of us who just "got it" one day. For me it seems to have correllated with antibiotics, but for other people....who knows? An illness? An allergic reaction? I hope that the fructmal diet gives you some relief! :) Yep, sounds familiar Elizabeth! Glad to meet you!

There seem to be a lot of us who just “got it” one day. For me it seems to have correllated with antibiotics, but for other people….who knows? An illness? An allergic reaction?
I hope that the fructmal diet gives you some relief! :)

]]> By: avthompson http://avthompson.wordpress.com/about/#comment-463 avthompson Mon, 09 Nov 2009 06:33:42 +0000 #comment-463 Hello Dawn! I am NO expert... and certainly not on things relating to the little ones, but I feel your pain and frustration! I'm glad you seem to be seeing improvement! The only candies I know made with glucose are, in the United States called "Smarties" and in Canada called "Rockets". They are little pastel-coloured tablet-like candies. They are packaged in a little roll of cellophane and around here they are very popular at Halloween. Apply for membership in this group: http://health.groups.yahoo.com/group/fructose_malabsorption_australia/ Nevermind that it says Australia, lots of us are members from all over the world. There are many parents in this group and this group is highly educated and shares good, solid, real info. I wish you well! :) Hello Dawn!

I am NO expert… and certainly not on things relating to the little ones, but I feel your pain and frustration! I’m glad you seem to be seeing improvement!

The only candies I know made with glucose are, in the United States called “Smarties” and in Canada called “Rockets”. They are little pastel-coloured tablet-like candies. They are packaged in a little roll of cellophane and around here they are very popular at Halloween.

Apply for membership in this group:

http://health.groups.yahoo.com/group/fructose_malabsorption_australia/

Nevermind that it says Australia, lots of us are members from all over the world. There are many parents in this group and this group is highly educated and shares good, solid, real info.

I wish you well! :)

]]> By: Dawn http://avthompson.wordpress.com/about/#comment-459 Dawn Sun, 08 Nov 2009 04:18:26 +0000 #comment-459 My daughter is 23 mo old and we are assuming she has fructose malabsorption. At her 1-yr check, her dr. noted several 'failure to thrive' red flags as well as gross motor delays. For the past yr. we have had every neurological test, every blood test, every possible specialist look at her. The gi dr. presented several possible options for her symptoms, one of which was fructose mal. Her only suggestion for that possiblity was to eliminate fruit and fruit juice. My daughter didn't seem to improve much (she has always had terrible diarrhea 4+x/daily since starting food, but this was not on the forefront of our concerns until about 20 mo). After we had crossed fructmal off of our list of possibilities, something brought me back to that possibility. Now we have completely changed her diet and done as well as we can with our two other sugar monsters, age 4 and 6 under the same roof and in the same kitchen. We have seen several days of improvement, and then usually a good couple blow-outs because I missed something. My desperate question is: What sweets are made with glucose??? I can't find any lists and such bits and pieces online. I haven't ordered any books yet. I saw your kinnikinnic cake listed and choc pudding frosting. I thought sugar is to be avoided or at least greatly limited. I feel so helpless to help her and she literally begs for sweets all day long. Any great suggestions? We have not completely eliminated wheat from her diet, but probably need to do so. Everything seems so trial and error... Thanks so much for your blog and for the helpful information. It is so discouraging when so many different drs. have never even heard of this. Thank you, this is a real gift you are giving others with similar needs and concerns. Dawn My daughter is 23 mo old and we are assuming she has fructose malabsorption. At her 1-yr check, her dr. noted several ‘failure to thrive’ red flags as well as gross motor delays. For the past yr. we have had every neurological test, every blood test, every possible specialist look at her. The gi dr. presented several possible options for her symptoms, one of which was fructose mal. Her only suggestion for that possiblity was to eliminate fruit and fruit juice. My daughter didn’t seem to improve much (she has always had terrible diarrhea 4+x/daily since starting food, but this was not on the forefront of our concerns until about 20 mo). After we had crossed fructmal off of our list of possibilities, something brought me back to that possibility. Now we have completely changed her diet and done as well as we can with our two other sugar monsters, age 4 and 6 under the same roof and in the same kitchen. We have seen several days of improvement, and then usually a good couple blow-outs because I missed something.

My desperate question is: What sweets are made with glucose??? I can’t find any lists and such bits and pieces online. I haven’t ordered any books yet. I saw your kinnikinnic cake listed and choc pudding frosting. I thought sugar is to be avoided or at least greatly limited. I feel so helpless to help her and she literally begs for sweets all day long. Any great suggestions?

We have not completely eliminated wheat from her diet, but probably need to do so. Everything seems so trial and error… Thanks so much for your blog and for the helpful information. It is so discouraging when so many different drs. have never even heard of this. Thank you, this is a real gift you are giving others with similar needs and concerns.

Dawn

]]> By: natalia http://avthompson.wordpress.com/about/#comment-451 natalia Mon, 02 Nov 2009 04:40:22 +0000 #comment-451 Hi, I'm so glad I found your blog! I got diagnosed with chronic fatigue syndrome a year ago, and have had 'sugar sensitivites' ever since. I can go off all sugar (not fruit) and the allergies to sugar subside with elimination except they dont for the fructose sugar. i found this out via an electro-dermal screening device that screens for sensitivites. I haven't had a hydrogen breath test yet to confirm, but i'm pretty certain i have fructose malab. I get really bad low blood sugar, and bloating, flatulence, brain fog, depression. I've tried going on a 'hypoglycemic diet' with no carbs or sugar and i get wayyy too tired but can't sleep at night. but during this 3-day trial i didn't get any bloating, flatulence etc.. I think the problem may be fructose malab. causing the hypoclycemia?! when i broke the 3-day trial i ate some fruit and got bloating and pain pretty much an hour later. does this sound like fructose malab. to you? I'm sensitive to nuts too. If I go off the sugar will my sensitivities decrease? hope you can get back to me :) thanks a lot! Hi, I’m so glad I found your blog!
I got diagnosed with chronic fatigue syndrome a year ago, and have had ’sugar sensitivites’ ever since. I can go off all sugar (not fruit) and the allergies to sugar subside with elimination except they dont for the fructose sugar. i found this out via an electro-dermal screening device that screens for sensitivites. I haven’t had a hydrogen breath test yet to confirm, but i’m pretty certain i have fructose malab.
I get really bad low blood sugar, and bloating, flatulence, brain fog, depression.
I’ve tried going on a ‘hypoglycemic diet’ with no carbs or sugar and i get wayyy too tired but can’t sleep at night. but during this 3-day trial i didn’t get any bloating, flatulence etc..
I think the problem may be fructose malab. causing the hypoclycemia?! when i broke the 3-day trial i ate some fruit and got bloating and pain pretty much an hour later.
does this sound like fructose malab. to you?
I’m sensitive to nuts too. If I go off the sugar will my sensitivities decrease?
hope you can get back to me :)
thanks a lot!

]]> By: Cat http://avthompson.wordpress.com/about/#comment-426 Cat Sat, 03 Oct 2009 01:50:30 +0000 #comment-426 Hey there, I was wondering if soy yoghurt needs to be cut from a FructMal's diet? My doctor thinks I may be FructMal and wants me to cut problematic foods. I'm definitely lactose intolerant - have been for years - that has been tested and diagnosed. Cheers, Cat Hey there,

I was wondering if soy yoghurt needs to be cut from a FructMal’s diet? My doctor thinks I may be FructMal and wants me to cut problematic foods.

I’m definitely lactose intolerant – have been for years – that has been tested and diagnosed.

Cheers,
Cat

]]> By: Cheryl http://avthompson.wordpress.com/about/#comment-409 Cheryl Thu, 17 Sep 2009 20:51:32 +0000 #comment-409 Your blog and website are so helpful and encouraging. My daughter is FM and I am looking for helpful sites. Thank you . Your blog and website are so helpful and encouraging. My daughter is FM and I am looking for helpful sites. Thank you .

]]> By: cheryl http://avthompson.wordpress.com/about/#comment-396 cheryl Mon, 07 Sep 2009 03:39:34 +0000 #comment-396 Hi Lisa, just read your entry & it reminded me of my 2 yrs of GI suffering, with pieces of a puzzle that didn't fit together. I, too, had lots of burping, getting worse & worse. I would start burping on an empty stomach first thing in the morning & it would only stop when I went to bed or laid down. I went to a 'specialist' who told me I was swallowing air & had to stop it- like I was doing it on purpose! I wasted almost a year with him, then thankfully was referred to another specialist who knew what he was doing and took an interest. After several tests, he diagnosed me with severe Gastroparesis AND Fructose Malabsorption. The test I did for GastroP involves eating 'radioactive' scrambled eggs then lying under an imaging machine for 2 hours. It seems it was the Gastroparesis causing the burping & the FM causing abdominal pain, diahorrea etc. Gastroparesis is delayed emptying of the stomach- apparently food was sitting in my stomach for over 20 hours. It seems unbelievable. It's now about 4 months since diagnosis & the GastroP is being treated with medication & diet. It's slowly improving, but can take 1-2 years. Where I'm having trouble is combining the GastroP diet with the FM diet. I'll have to find a good dietician. Anyhow, wanted to let you know about my experience, as your symptoms sound similar. Good luck! Hi Lisa, just read your entry & it reminded me of my 2 yrs of GI suffering, with pieces of a puzzle that didn’t fit together.
I, too, had lots of burping, getting worse & worse. I would start burping on an empty stomach first thing in the morning & it would only stop when I went to bed or laid down.
I went to a ’specialist’ who told me I was swallowing air & had to stop it- like I was doing it on purpose! I wasted almost a year with him, then thankfully was referred to another specialist who knew what he was doing and took an interest.
After several tests, he diagnosed me with severe Gastroparesis AND Fructose Malabsorption.
The test I did for GastroP involves eating ‘radioactive’ scrambled eggs then lying under an imaging machine for 2 hours.
It seems it was the Gastroparesis causing the burping & the FM causing abdominal pain, diahorrea etc.
Gastroparesis is delayed emptying of the stomach- apparently food was sitting in my stomach for over 20 hours. It seems unbelievable.
It’s now about 4 months since diagnosis & the GastroP is being treated with medication & diet. It’s slowly improving, but can take 1-2 years.
Where I’m having trouble is combining the GastroP diet with the FM diet. I’ll have to find a good dietician.
Anyhow, wanted to let you know about my experience, as your symptoms sound similar.
Good luck!

]]> By: Elizabeth Murray http://avthompson.wordpress.com/about/#comment-384 Elizabeth Murray Mon, 24 Aug 2009 01:08:33 +0000 #comment-384 Hi, I was diagnosed with Fructmal about 4 months ago by my gastro doctor through a breath test. I was totally shocked that this could all of a sudden "happen" at 38???!!!! My symptons are severe bloating, constipation and gas. I also gt a bad feeling of "Fullness" and burpy. I am so thankful to have found your site. There is NOTHING really out there for us!!!! Elizabeth Hi, I was diagnosed with Fructmal about 4 months ago by my gastro doctor through a breath test. I was totally shocked that this could all of a sudden “happen” at 38???!!!! My symptons are severe bloating, constipation and gas. I also gt a bad feeling of “Fullness” and burpy. I am so thankful to have found your site. There is NOTHING really out there for us!!!!

Elizabeth

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