A.V. Thompson’s Weblog

What is Fructose Malabsorption Disorder?

What is Fructose Malabsorption Disorder?

Fructose Malabsorption Disorder, logically, is the inability to absorb fructose (which is the sugar which occurs naturally in many foods – mostly fruit).

It used to be called Dietary Fructose Intolerance, but that term has been largely abandoned (and smally ~little snicker~ still clung to by people who won’t GET WITH THE PROGRAM – sheesh!). The old term is both illogical (since we CAN “tolerate” fructose once it gets into our system – we just can’t absorb it in the first place) and confusing (since there is a different disease called Hereditary Fructose Intolerance – which is genetic and can give you liver damage that can lead to DEATH! – a condition which has NOTHING to do with our disease – though we’re on similar diets…..

…..and like many of the same movies, and we both gesture enthusiastically in the same way, we both like long walks…~sigh~ …AHEM! Sorry….where was I? DEATH! Yeeeees, DEATH! Very bad. We FructMals don’t die from our disease, but just go to the toilet rather dramatically and then we see no reason to go on living…. for a few days. That brings us to:

What are the Symptoms of Fructose Malabsorption Disorder?

Well, if you eat something containing fructose and you can’t absorb it, it ends up going aaaall the way down to the lower intestine (you didn’t think we were going to get to talk about INTESTINES today, did you? YAY!). The lower intestine is not a place fructose is supposed to be, the bacteria down there are a bit crazy – a bit insane – and giving them fructose… well they never get a treat like that! They go a bit “piranha”, if you get my meaning. They start gobbling it up and they excrete (yes, that means “poo”) hydrogen gas (or – if your a rare one – methane). As a result, said FructMal sufferer gets bloating, abdominal cramps, diarrhea, excessive gas! Hoorah! um…..except ME of course! ~heh, heh~ I just have to…uumm…. demurely visit the loo OCCASSIONALLY…and it’s NEVER an…emergency or anything. ~awkward silence~

..~Well!~..

….So!….ummm……yes.

LATER….Much Later…. day or so… well that’s when the second whammy hits. You see, everyone needs a little gem called “tryptophan”. There is a common misconception that the tryptophan in turkey makes you sleepy. Actually, it’s the incredible energy you expend eating all that Thanksgiving dinner without shrieking obscenities at your relatives that tires you out. Tryptophan is actually a valuable, nay, “essential” amino acid that your body NEEDS (hence the “essential” thing) to function. Specifically, your body uses tryptophan to make serotonin! That’s right! Everyone’s favourite neurotransmitter, because it makes you HAPPY!

okay…it doesn’t make you happy. It contributes to …not being depressed?

The data? Blood levels of serotonin are markedly lower in those suffering from depression.

Nuff said!

………………..trytophan is also made into MELATONIN! That NOBODY’S HEARD OF! YAY! It makes you SLEEPY when it’s DARK! Yahoo!..Well…. actually the inability to sleep IS depressing so… don’t “diss*” the Melatonin.

So why are we talking about tryptophan? Because, if fructose manages to make it to the lower intestine piranha party, it BONDS with whatever tryptophan is present and renders it also UNABSORBABLE! ..INabsorbable! NOT absorbable! Whatever! You POO IT OUT, okay? Sooo….

No tryptophan, no serotonin, no melatonin, equals miserable, horrible, angry, weepy, depressed, laconic, and thoroughly vicious FructMal sufferer. For a couple days. Then it goes away…..IF :

IF, IF, if you STOP consuming fructose!

So What’s Got Fructose?

Here’s the deal; wanna play it safe? Stay away from fructose (duh!), because… ahem, did you READ the first part of the page? That’s fructose itself (in processed food) as well as fruit, fruit juice, jam, etc. Remember, HFCS is an abbreviation for High FRUCTOSE Corn Syrup. Fructose = BAD.

Stay away from fructans, too. They are just as bad if not worse! Those are chains of fructose molecules ending in a glucose molecule. They come in different chain lengths, some make a nice choker, some are long and, like, you can TOTALLY do the, like, bellychain thing? And um, like, you can do, like, really short chain earrings ‘n’ junk!…AHEM! ~sorry~ chains! Tolerance for chain length can vary, but across the board avoid wheat, spelt, kamut, onions, spring onions, leeks, …all the onion stuff basically… the biggies for veg are asparagus and artichoke. Also stay away from brown rice! White rice is okay, but the husk part has fructans. So it’s happened! Finally a diet that says the weird hippy-wholegrain crap is BAD! Yah Baby!

The piranha party can only get worse if you invite more piranhas, right? So nothing with MORE bacterial cultures! That’s just more piranhas! So nothing like yoghurt. “Probiotic” is the fancy word right now for active bacterial cultures AKA piranhas! Of course, if you are REALLY good about eating NOTHING with fructose or fructans, you don’t care how many piranhas are down there because you’re not sending them any treats – but why take a chance? Wheat, onions, and fruit products are hidden in places you don’t suspect! Be on Guard! Touche!

Also, don’t go feeding the piranhas any super food! Stuff that has been found to be “superduperfood” for bacteria is called “prebiotic”. A lot of yoghurt nowadays has probiotics (bacteria) and prebiotics (superfood for the bacteria to feed on). This, for FructMals, is HELL IN A PLASTIC CUP!!! Begone DEVIL!!! Also beware of “Inulin” AKA “FOS” AKA “fructo-oligosaccharides” AKA “chickory”. This product is SUPER-prebiotic! It will turn your piranhas into Incredible Hulk Piranhas!

What’s okay, but might not seem okay? Rye Flour is totally cool – so is oats and buckwheat (because it’s not really wheat) – it’s just riding wheat’s coattails and TOTALLY mooching off that poor grain. Wheat should NOT stand for that! I would just say, y’know, buckwheat? What’s your deal? You can make it on your own merits! I mean that! You are an AWESOME grain! …

Where was I?

Meat? Eat as much as you want….. if you want to die of a heart attack. I mean, use common sense, right? But the whole fructose thing…. meat’s cool. Potatoes? Mixed info. Some say some are bad, some say all are good. Gotta experiment for yourself.

Any Tips or Tricks?

Look for foods that say “Gluten-Free” or that they’re suitable for Celiac’s Disease. Our problem isn’t gluten, but it’ll mean the product is wheat-free and it’s a good start. You’ll still have to read the label looking for fruit, brown rice, spelt, blah, blah, blah, but….. good start.

What else? Use gluten-free or wheat-free as a search term on the internet. The gluten-free brigade has their PR going full steam and there’s lots of great recipes! We really need to up our game in the PR department, FructMals!!!

Dextrose (AKA Corn Sugar AKA glucose), if consumed at the same time as fructose, in an equal or greater quantity, can bond with the fructose and allow it to absorb BEFORE it reaches the piranhas! We like dextrose/glucose! Get a bag from the health food shop and keep a bottle of the powder with you to add to coffee or tea or whatnot if you are going to a restaurant or something and you’re not sure of the ingredients. DEXTROSE WILL NOT HELP YOU WITH FRUCTANS!! Only with fructose. This is handy to know when you are reading ingredient labels in the grocery store! Remember gang, ingredients are listed in order of amount – so if it’s first on the list, there’s lots – if it’s farther down the list there’s only a little. If your favourite food has dextrose or dextrose syrup or glucose or glucose syrup close to the top of the list and fructose waaaaaaay down near the bottom…..and there’s NOTHING ELSE that might give you a problem, you can probably handle that food. Mind you, this trick only works in small doses – so itty-bitty- dainty bites, okay?

Hope that’s given you all you’d like to know! Spread the word, because there’s precious little info around – and most of it’s rumour and misinformation and …well….crap.

Okay… “poo”.

:)

AVT

*= Please Note: I have no Idea if that is how “diss” is spelled. ~sigh~ I am SO not cool or hip or whatever.

80 Comments

80 responses so far ↓

  • rosiegirl // June 17, 2008 at 6:28 pm | Reply

    Only you could make me laugh at this. Loved it.

  • avthompson // June 17, 2008 at 9:27 pm | Reply

    ROFL!!
    We are intelligent, AND funny!! Not fair really, since we are also breathtakingly attractive, adept at witty and topical reparte, and heal the sick..Ta DAH!
    Thank goodness we both have blogs, to share ourselves with the WORLD!!
    ~~teehee~~
    Thanks!
    :)
    AVT
    ………I think I’ve been watching too much Eddie Izzard on YouTube.

  • Acoustic Eagle (aka Donna) // June 19, 2008 at 1:38 pm | Reply

    Brilliant! who’d have thought our mutual fructmal condition could be so *dang* funny. Is it ok that I link to your site. It is too brill…

    Keep up all the good work girl. Ac

  • avthompson // June 19, 2008 at 3:49 pm | Reply

    Why thank you, Ms. Eagle!

    Go right ahead! I can’t really harp about lack of PR if I don’t greenlight takin’ some action, now can I?
    I’m flattered and tickled!

    Though if you’re tickling me, I get to call you Acoustic! :)

    AVT

  • Stephanie // June 21, 2008 at 7:58 pm | Reply

    Hey guys,
    I found a miracle, its called BEANO, my gastroenterologist recommended after I was diagnosed. It is an enzyme replacement and its been absolutely fantastic. I’ve been taking it for 2 years and I am completely symptom free and I can eat anything I want. You can get it in all drug stores. Here is the website for BEANO http://www.beanogas.com/
    ENJOY,
    Stephanie

  • avthompson // June 21, 2008 at 9:02 pm | Reply

    Hello, Stephanie! I’m glad you found something that worked for you! Evidently you either have an additional condition complicating your Fructose Malabsorption Disorder, or you have an intolerance for a *di-saccharide*.

    “Beano” is an enzyme (specifically alpha-galactosidase). An enzyme breaks apart di-saccharides (like lactose for example) into their component mono-saccharides for digestion. If you have a problem with di-saccharides, something like Beano may work for you!

    Fructose, however, cannot be “broken down” by an enzyme like Beano, because it is *already* a mono-saccharide.

    Congrats on finding something that works for you! That’s wonderful! One day, there will be something for all of us, I’m certain!

    :)
    AVT

  • Jan // August 13, 2008 at 12:40 am | Reply

    It’s interesting how you’ve concentrated on depression, **melAtonin**…

    I was thinking to contact you, since I have a “short” questionaire about irritant foods and so. I’m trying to make an usefull list of foods to try and to avoid (click my name) – just for fructmal newbies…

  • avthompson // August 13, 2008 at 9:17 pm | Reply

    LOL!!! Thanks for the heads-up on the typo! Now corrected!

    I visited your site and it’s really great! Perhaps we can trade links… I have a site devoted to fructmal (fructmal.googlepages.com) and it is already outgrowing googlepages.

    Your foodlist is interesting. Nuts being an issue is totally new to me. I have never had an issue with any of them and it has not come up (to my knowledge) on the fructmal discussion board I’m on. One of the frustrating things about this ailment is that the research is so spotty and inconsistant.
    I HAD heard that white grape juice and pomegranate juice were supposed to be “favourable”. Not for me. Not even a tablespoon every two days. EEEEEeevil!

    Also, I have never heard anything about stevia being an issue. We definitely need to email!
    Please email me at fructmal@gmail.com. In turn, I will look for an email address on your site.
    :)
    AVT
    ………….sometimes people’s email filters send gmail stuff to the spam file, so if you don’t hear from me, check there!

  • Alli // August 23, 2008 at 2:58 pm | Reply

    I’m new to this site and was really interested in the “thought it was celiac” because my mom has it and that’s what I swore I had, but testing was neg. and nowthe GI just did the Fructose tolerace test. But what is the difference between fructose intolerance and fructose malabsorbtion? How do you find out?

  • avthompson // August 30, 2008 at 6:25 pm | Reply

    Hi, Alli!

    Currently there is a real issue with confusing terminology in the Fructmal world!

    Basically, there are two conditions: one is called Hereditary Fructose Intolerance, or HFI. This is a genetic disease which is VERY serious. A person with HFI must consume basically ZERO fructose, as they are unable to process fructose at all. They are “intolerant” in the medical sense of the word. HFI can result in organ damage or death.
    The other condition is not so serious. It is the condition I have. Outside of North America it is most often referred to as Fructose Malabsorption Disorder, however in Canada and the US it is often known as Dietary Fructose Intolerance or DFI. Those of us within the Fructmal world are sort of campaigning to get everyone on board with the Fructose Malabsorption term.
    It is the prevailing term around the world, and the DFI label is both confusing (because it is SO similar to the HFI label) and it is actually medically inaccurate.
    Those of us with this condition have a very difficult time getting fructose to absorb. That is, it stubbornly refuses to move through the wall of the intestine into the bloodstream.
    Once it is IN the bloodstream, our bodies deal with it perfectly well – that’s why medically our condition is not an “intolerance” but a “malabsorption”.

    In order for you to determine properly if you have Fructose Malabsorption (or as it is stubbornly still called by many: DFI) a GI needs to give you a Hydrogen Breath Test. If this turns out negative, have a Methane Breath Test done – some Fructmals exhale methane rather than hydrogen – and some exhale a mixture. Some GI’s test for both gases at the same time.

    Let me know how it turns out!
    :)
    AVT

  • Alli // September 5, 2008 at 5:27 pm | Reply

    Hi again- well I guess I’m Joining the “club”. The test was positive – they just said the message from the doctor was go on a strict fructose and sucrose free diet and now I’m really confused- why sucrose too? what will I eat? what do I do now?!

  • avthompson // September 7, 2008 at 9:22 pm | Reply

    Hello, again!

    Okay – wait – sucrose? That’s a little hardcore.

    Just to confirm, your Gi doct says you have fructose malabsorption (dietary fructose intolerance), yes?

    I think I know why he is asking you to stay away from sucrose, but if you have fructmal – it’s really only necessary to watch that you don’t go overboard with it.

    Fructose is a mono-saccharide. That is, it is a sugar comprised of only one molecule. It cannot be broken down or broken up because it is a single molecule. Other mono-saccharides include galactose (found in milk), and glucose (also known as dextrose) which is the form sugar takes in your body.

    Sucrose (like table sugar, icing sugar, brown sugar, etc) is a di-saccharide. A di-saccharide is a sugar which is made up of two molecules – one each of two different mono-saccharides.
    For example, lactose is a di-saccharide. It is made of one molecule of galactose and one molecule of glucose.
    Sucrose is one molecule of glucose and one molecule of fructose. Yes, fructose. ~sigh~

    Don’t get too worried, though. A tried and true “trick” of Fructmals is that we know that one molecule of glucose (dextrose) HELPS US ABSORB one molecule of fructose. For some reason, glucose takes fructose by the hand and carries it through the intestinal wall – assisting absorption.

    For this reason, we usually carry dextrose/glucose powder or tablets around with us. I have a tube of Dex4 tablets and a roll of Dextrosol tablets in my purse. In Canada we have a candy called Rockets
    http://tinyurl.com/6eo4vz
    that are almost pure dextrose. In America the same candies are called Smarties. Many of us use these candies in a pinch.

    This trick only works in SMALL doses. For emergencies. When you just realized you accidentally had some fructose. Pop some dextrose tablets and you probably won’t have a reaction (provided the accidental dose was small. You CANNOT have a couple of tablets and then go….eat a slice of apple pie. Too much fructose. No amount of dextrose/glucose will help you).

    So you see, your doc was probably warning you off of sucrose because it does have fructose in it – but knowing the glucose trick as we do (shares a *wink*), we know that since sucrose has fructose AND glucose it has it’s own little “dextrose tablet” built in! YAY! Just keep the doses small.

    I have a teaspoon of turbinado sugar in my tea (about six cups spaced throughout the day) and have no problem, though amount REALLY varies from person to person.

    The question is, did he warn you that there is fructose in wheat, spelt, onion, asparagus, and artichokes? A lot of North American doctors don’t realize this because the fructose in these foods is in the form of *fructans* – that is, chains of fructose molecules ending in a glucose molecule. And the dextrose/glucose trick DOESN’T WORK for fructans. If you look up wheat on a nutrition chart is says “Fructose=ZERO”, but that’s because the charts don’t count fructan chains as fructose.

    Your body does though. EEEEvvvil wheat and spelt and onions! Trust me. I was off fruit religiously for 15 years, but never got real relief until I found out about fructans and got rid of them too!

    Check out my fructmal website:

    http://fructmal.googlepages.com

    I will soon (hopefully in about a week) be graduating to a bigger, better, website with my own domain name – but the info up on my googlepages might help you.

    Keep in touch!
    AVT

  • Alli // September 13, 2008 at 3:24 pm | Reply

    Hey there-well I haven’t starved to death yet, but tell me what do you eat! and I am getting a wicked headache every evening- it’s like my body is begging meto give it a sugar high- please tell me this will go away! Other than that-OMG I feel so——–much better! I really miss tomatoes though and there is NO way to substitute anything else!
    I called my GI doc’s office and my regular doc and well they are just no help. My regualrdoc said “wow, that really stinks, that’s a tough diet”.
    Oh here’s my other question- do you take vitamins or anything?
    I really appreciate your help it has truly saved me from starving to death! Talk to you soon!
    Alli

  • avthompson // September 15, 2008 at 11:11 am | Reply

    Hi there!

    Well, I am right at this moment sitting in a restaurant typing my response on my mini-laptop (the restaurant has wifi).

    I am having coffee with milk and sugar, a bacon and cheddar omlette with panfries and sliced tomatoes (I actually have no issue with tomato).

    Later I might be meeting my sister for sushi! BC roll is my fave – sushi made with grilled salmon!

    It is a GORGEOUS sunny day, and I’m debating whether I will celebrate the waning summer by getting a cup of ice cream at the candy shop down the street (they offer little plastic cups for those who don’t want a cone).

    Remember, sucrose is moderation shouldn’t be an issue (unless you have another condition complicating your fructmal). Chocolate, cheesecake without the crust, ice cream, should all be fine in moderation.
    I live in Canada, and there is a pop (soft drink) call Canada Dry Green Tea Ginger Ale which is DELICIOUS and givesme not reaction.
    Also keep in mind that dextrose(glucose) will give you NO reaction at all – totally safe. If you want to try baking with it, many health food stores stock bags of powdered dextrose – or you can order it online. It does give a sort of “dry mouth” effect, though – you’ll ned to experiment.

    When I relaunch the new and improved fructmal site, I should devote a section to “typical days of eating”, maybe.
    In the meantime, faves in my house:
    shepard’s pie
    omlettes
    steak and baked potatoes with sauteed veg
    stuffed green peppers
    rice and chili con carne
    potatoes au gratin
    irish stew

    Keep in Touch!
    AVT

  • Clare // October 21, 2008 at 3:41 am | Reply

    Hi, my one yr old baby has just been diagnosed with fructose malabsorption and I’ve just jumped on the net to “learn up” what he can eat and why we’ve not slept for a whole year! Your info has been brilliant, far more comprehensive than any other website. Thank you so much, and keep it up.

    From Clare in Australia!

  • avthompson // October 24, 2008 at 10:51 pm | Reply

    Thanks so much, Clare!

    I’m so sorry that your baby and family are going through this – but glad you are networking with those of us online!! Knowing there are others out there is great, isn’t it?

    My fructmal googlepages site should be getting a MAJOR rehaul, though it’s been delayed by me getting sick as a dog recently! ~sigh!~ Some kind of flu going around.
    I hope to bring in more research sites, articles and a proper recipe section.

    Stay in touch!
    AVT

  • sarah // November 13, 2008 at 3:53 pm | Reply

    hi, I was interested in Clare and her baby – we have a 1 year old that i think may have fructose malabsorption….. i was convinced he had celiac (dropping weight and height, anaemic and really gross stools…. loose and greenish…sorry!) anyway, blood test showed he is not celiac so i have been hunting while we wait to see our paeditrition. Our son does NOT SLEEP!!! could this be connected? how did you get your diagnosis? I would love any advice, thanks loads, sarah. (UK)

  • avthompson // November 15, 2008 at 6:36 pm | Reply

    Hello Sarah!

    I’m so sorry your little one is having troubles. The diagnosis for fructmal is a hydrogen breath test… although some fructmals exhale methane rather than hydrogen, so if the hydrogen breath test is negative you still may have fructmal… a methane breath test would then be needed.

    You’ll have to talk to a pediatrician or a pediatric GI…if there is such a thing! I don’t know if these breath tests can be administered to the wee ones.

    In the meantime, eliminating all fruit and all wheat may help… but you must proceed with total co-operation with a doctor. When little ones are involved it’s a big deal – as you know doubt know already! A one year old that is dropping weight is VERY serious. Calories are vital!

    Apply for membership in this group:
    http://health.groups.yahoo.com/group/fructose_malabsorption_australia/

    It doesn’t matter if you don’t live in Australia. Many of the members have fructmal little ones.
    If you aren’t accepted (the mod is terrific, but she’s been overwhelmed with applications now that fructmal is getting known and this is the best group I’ve found), post another comment here on my blog and I’ll try and get you some email addresses from some of the mommy-members. Sharing with those who know is really important!

    Sorry I couldn’t be more help!

    AVT

    PS… as to the sleeping… YES. It could very much be related. When fructmals ingest fructose, it ends up rendering tryptophan inabsorbable as well by bonding to it in the lower intestine. Fructmals therefore have low tryptophan levels. Tryptophan is needed by the body to produced serotonin (a mood stabiliser – women going through PMS depression are low in serotonin) and MELOTONIN which is what signals your body to go into sleep mode when it get dark.
    Fructmals who consume fructose therefore experience depression, mood swings, and sleep disturbances or insomnia.
    Go to my fructmal website here:
    http://fructmal.googlepages.com

    Go the the Research page and check out the links for “Fructose- and sorbitol-reduced diet improves mood and gastrointestinal disturbances in fructose malabsorbers” and “Fructose malabsorption is associated with early signs of mental depression” for the actual scientific stuff.

  • Vickie Milgie // November 21, 2008 at 5:15 am | Reply

    Daughter 17 has severe fructose malabsorption and is getting really depressed. Are you taking any supplements?

  • avthompson // November 22, 2008 at 7:23 pm | Reply

    Glad to cyber-meet you, Vickie!
    I’m sorry to hear about your 17 year old, though wish it hadn’t taken me so much of my life to figure out what was wrong!

    I take a nice assortment of general vitamins plus a Vitamin C pill. I avoid the grocery store brands that are fruity and chewable. I get my Vitamin C from the health food store. Talk to the staff and find out if you can get Vitamin C sourced from a source other than fruit (like seaweed).

    Fructmals who consume fructose OR FRUCTANS will experience depression. That’s because in fructmals, fructose is not absorbed and therefore makes it all the way to the lower intestine. Fructose in the lower intestine is not good! It ends up bonding with whatever tryptophan is there.
    This stops the tryptophan from being absorbed and then the fructmal’s body has no raw material for the manufacture of melotonin (for sleep) and SEROTONIN which is a “feel-good” neuro-transmitter. Without serotonin, you are biologically incapable of being happy for any length of time. I know I’ve mentioned the fructmal issue with tryptophan absorption before in my responses to other questions, but it really is a biggie! It’s also something that North American doctors and recommended diets really don’t acknowledge enough. It’s huge!

    Is your daughter off ALL fruit products? ALL wheat, spelt and kamut? ALL members of the onion family? Other very important things to avoid are Brown Rice, Green and Yellow Beans, Artichokes, and Asparagus. Some fructmals react to some potatoes and many are sensitive to corn and carrots. Don’t worry right now about potatoes, corn and carrots, though.
    The other things I have mentioned are VITAL, even for me and I’m not “severe”.
    Fruit and fruit products ALL contain fructose, but many don’t realize that the other foods I’ve mentioned contain fructans. Fructans are chains of fructose molecules ending in a glucose molecule. They are just as bad as fructose, but often have a delayed reaction (usually several days), so people don’t “connect” the reaction to the food. You have to avoid these fructan containing foods for at least 6 weeks to truly achieve relief.

    Although, I have to say, after two weeks off fructans I woke up one morning and it was like ….. like a I’d been stuck in a dark, grey, cold winter for years and had awakened to a beautiful, sunny spring day! I could not believe the difference. As the weeks went on, I felt better and better. Now, the GI symptoms are one ting, but if diarrhea was the only penalty for eating cake I’d probably be tempted. But no cake is delicious enough for me to be willing to go through my old depression again – not even for a few days. Now that I know what it’s like to feel …well, normal! I don’t burst into tears doing the dishes anymore as I think about how useless and pathetic washing the dishes is…… yah – not goin’ back to that.

    If she is avoiding all these foods already – make sure she’s eating enough poultry. Just about all meats have tryptophan, but apparently poultry has more (or so I understand). She needs to bring her tryptophan levels up so her body can make enough serotonin.
    I know you’ve probably seen eveery doctor around, I know my Mum took me everywhere and was told it was “teen angst” and other such nonsense. Not to mention all the doctors who are all too eager to give you prescriptions for drugs without really investigating WHY you’re depressed…. but you really need to keep the faith and try and find a doctor to work with. Depression and dietary problems can snowball and become life threatening issues – especially for young people!

    What is she eating right now? How was she diagnosed? What’s your family’s story?

    Please keep in touch,
    AT

  • Sonia // November 28, 2008 at 3:31 am | Reply

    Hi AVT!

    Like every one I’d like to thank you so much for putting all this info out there for fructmals. I’m fructmal and lactose intolerant. I seem to be on the severe end of fructmal which I bet is probably complicated by the LI.

    I’ve tried many diets but while the LI is easy to manage the fructmal is driving me nuts as I can’t seem to digest anything!! I guess I’m going through a lot of trial and ERROR…manily error it seems.

    I was just wondering if in your experience fructmals can experience tailspin episodes which last for weeks if even 1 thing in the diet isn’t right although they are being very careful and restrictive?

    Once again thank you so much for being online and upbeat. It really helps!

    Sonia.

  • avthompson // November 30, 2008 at 7:26 am | Reply

    Hello Sonia!

    Yes, fructmal is notorious for having lingering reactions. I, for example, have very prolonged reactions to fructans, so when I eat something like wheat, I get GI symptoms for 3 or 4 days, then depression, irritability, and sleep problems for over a week. If the trouble continues longer than that, then there is something you’re eating on a semi-regular basis that you shouldn’t be eating.

    Let’s run the list:

    For sure, avoid:
    All fruit and fructose
    Wheat, spelt, kamut, brown rice
    All of the onion family
    Asparasus, artichoke, green and yellow beans
    Anything probiotic (like yoghurt)
    Anything prebiotic (like FOS, or chicory)
    The “-itols” (like sorbitol, maltitol, etc)

    GREATLY reduce your intake of sucrose, honey, molassas, etc

    THEN,

    If you still have symptoms after 6 weeks,
    eliminate:
    corn and tomatoes
    rye and oats
    all nuts
    all honey (the ratio of fructose to glucose is not consistant in honey, as it is in sucrose)

    If, after several weeks you still have trouble, try eliminating all potatoes. Not a lot of frutmals have trouble with potatoes, but some do.

    Remember, these eliminations are NOT PERMANENT. You’re basically giving your body a rest. Every fructmal has their own unique “forbidden”, “occassion” and “okay”
    list – we’re all different. The idea is that you get rid of everything that might be causing a problem, and then after 6 weeks of rest, you bring the foods back, in VERY SMALL DOSES one food at a time. Give yourself a week or so after introducing a new food as many have – as I mentioned – delayed reactions. Also, different varieties of veg or potatoes or fruit have different fructose/fructan amounts. Also commercial freezing (not home freezing) changes fructose levels, as does cooking.

    Some fructmals find they can have the occassional strawberry, as long as it was commercially frozen – some can have one or two kinds of potatoes but not the others.

    Be methodical, and don’t start new foods until you have brought yourself to a “rest point” where you know you’re clear, otherwise trying to connect food to response will be confusing and frustrating.

    Tell me how it goes, and post any questions!

    :)
    Ariana

  • Sonia // December 3, 2008 at 2:22 pm | Reply

    Hi Ariana,

    That’s great advice! I’ll let you know how I get on. Thank you for all the details and tips.

    I was wondering if you have noticed any improvements if you have taken zinc or folic acid supplements?

    Many Thanks,

    Sonia.

  • Linda // January 13, 2009 at 5:52 am | Reply

    Awesome post, thanks very much :) I had just read a formal research paper that included much of the same information, yours was much more fun to read!

    Ever heard of having problems with garlic?? I seem to be very intolerant to it :(

  • Sandi Harvey // January 15, 2009 at 10:35 pm | Reply

    Hi – I’ve just today been diagnosed with fructose malabsorption and don’t know whether to be happy or sad. I’m happy to have a name for my condition after months of feeling absolutely awful, losing 12kgs in weight and of course the bowel problems. Be careful what you wish for comes to mind as I have been heard to say on many an occasion that I don’t care what is wrong with me I just want a name for it!! I have found all the above comments very, very helpful but still not sure what I should eat. Next week is the lactose breath test and I shall just pray I’m not lactose intolerant as well. It all makes a bit of sense now as I adore raspberries and mangoes, fruit mince tarts, christmas pudding and cake etc. Think they are things of the past now. So dinner tonight will be white rice and chicken breasts I think. Keep up the good work it is so helpful to know someone is “ahaed” of you in this game. Sandi

  • avthompson // January 15, 2009 at 11:36 pm | Reply

    Glad to hear from you, Linda!
    Also glad you got a giggle from the post! LOL! Gotta have a sense of humour, right?

    As to garlic, it is a member of the onion family. All onions have fructan chains – so fructmals do react. As with all things in the fructmal universe, each person’s degree of sensitivity is specific to them. I’m okay with garlic and marginally tolerant of the green parts of onions (chives, for example, or the green part of green onions – but not the white bulb part).

    Most fructmals are okay with onions being used to flavour soups and stews – but cannot eat the flesh itself. Try cutting your onions into big chunks, and as for garlic, just peel it and crush the clove a little with the side of your knife – just enough to tear it a little. Then put your onion and garlic in a cheesecloth bag tied with cotton string. This can go into your soup, stew, or spaghetti sauce, then be removed before serving.
    :)
    AVT

  • avthompson // January 15, 2009 at 11:56 pm | Reply

    Hello Sandi! I understand your mixed feelings.

    My Nov 30th response to Sonia (see above) is a general guide for giving your body a rest from possible trouble foods. Feel free to post any questions about clarifications!

    I’m sending you my positive energy, and hopefully you won’t turn out to by LI ! LOL!!
    I’ve got to tell you though, it is a VERY common combo! Lots of fructmals are LI.
    You are not alone!
    :)
    AVT

    ………….by the way, chicken and white rice are TOTALLY fine!

  • avthompson // January 16, 2009 at 12:01 am | Reply

    Hello again Sonia!
    There is folic acid and zinc in my multi-vit, but I don’t take folic acid or zinc pills.

    I eat red meat, liver pate, and lots of beans/lentils so I’ve always figured that was good enough!

    :)
    AVT

  • KK // January 28, 2009 at 1:15 pm | Reply

    This is a really helpful site! I’ve known I have fructose malabsorption for awhile and have done some modifications. I just found out about fructans, and I’m having a HORRIBLE time trying to not eat wheat. Any advice? I like to cook and bake, but nonwheat baking looks so complicated, and it seems people don’t get very good results.

    If I had one reliable bread recipe (doesn’t even have to be yeast bread, just something for sandwiches, toast, etc.) I might be able to give it a go. I fashioned some decent oat flour/flax seed muffins.

    Also, I’ve tried dextrose with fruit, and it doesn’t seem to work all that well for me. Should I just stay off fruit entirely for awhile and try again?

    I stayed off wheat for three days a few weeks ago, and I noticed a big difference in mood. (I take medication for depression).

    Thanks!

  • Erica Klein // January 31, 2009 at 8:25 pm | Reply

    Hi, love your site! Question, you say ‘no fruit’ but what about bananas? Most of the fructmal lit says ‘ripe bananas’ ok, I like them a little green and it seems to work for me. Erica

  • Denise // February 4, 2009 at 9:17 pm | Reply

    I need help, please!!! My daughter has been violent since one. I think she may have fructose malapsorbtion problems. Please, let me know if I am at the right place?

  • avthompson // February 5, 2009 at 6:58 pm | Reply

    Welcome KK!

    Well, I’m afraid to truly get relief you need to give your body a TOTAL rest! That means ALL fruit, ALL wheat/spelt/kamut, ALL the bad stuff for 4 to 6 weeks.
    Trust me, you have no idea what “good” feels like until you have done this.

    I don’t know where you live, but here in British Columbia I have access to some great wheat/spelt/kamut-free breads (brands like kinnikinnik and glutino) as well as great mixes (like red mill and celimix).
    I would suggest you start with a boxed mix, just so you get a feel for what the dough is supposed to smell like, feel like, etc. It’s very different.
    For example, the Celimix mix for hamburger buns is really good, but it’s like pancake batter. You need to use some sort of hamburger-bun-sized mold to pour into. It comes out a little like bread crossed with sponge-cake!
    Most wheat/spelt/kamut-free bread is sold frozen, and you must keep it frozen. When you make a sandwich, pull out two frozen slices and pop them into the toaster (like making pop-tarts).
    I have never baked bread, but all the “buzz” from the bakers is that if you can, opt for buns rather than bread – for it’s very difficult to make bread come out well.
    Keep us posted as to your baking adventures!

    As far as fruit…. you MUST MUST eliminate ALL fruit for the 4 to 6 weeks rest period – really. After this period of rest is over, you may tolerate fruit that you couldn’t before. I know many people figure they can just skip the 4 to 6 week “off everything” period, but it really is necessary. It’s sort of like hitting the reset button on your symptoms. You’ll find you tolerate more foods after this period than if you skipped it….that was my experience, anyway.

    Dextrose helps is SMALL doses, for small amounts of exposure to fructose (not fructans). What’s a small dose? Everyone’s different. Every fructmal has their own “forbidden” “occasionally” and “okay” list that is unique to them.
    For some fructmals, two commercially frozen strawberries (not home-frozen) is a “small” dose. For me, a slice of ONE strawberry is a small to medium dose. If I have a forkful of salad and then find out the dressing is “raspberry vinegrette”, I need two dextrose tablets immediately – and that MAY not eliminate the symptoms, it may just tone them down.
    However, I have no reactions at all the green parts of onions – only the bulbs – and most fructmals react strongly to any onion content.
    Everyone’s different.

    I hope to hear from you again!
    :)
    AVT

  • avthompson // February 5, 2009 at 7:03 pm | Reply

    Hi Erica!

    If bananas are okay for you, go for it! Everyone is different. Trust your body.

    Just remember that most fructmals have immediate reactions to some things and delayed reactions to others – sometimes delayed for several days. This can make pinpointing cause to effect difficult.

    :)
    AVT

  • avthompson // February 5, 2009 at 7:10 pm | Reply

    My goodness, Denise!
    I hope you have many people around you to support you.

    Do you mean she has been violently sick (like dramatic diarrhea, mood swings, inability to sleep, vomiting), or do you mean she is actually *violent* (hitting, kicking, etc)???

    What does you pediatrician say? The wee ones must have a doctor’s guidance when they’re not well. It may be difficult to find one you trust, but you must be diligent.
    When little ones are very sick, they are not putting on the weight they need to be healthy, and it’s difficult to restrict their diet without depriving them of much needed nutrition.

    Is she ill or is she hurting people?
    Do you have a doctor?

    AVT

  • Heidi // February 6, 2009 at 5:35 am | Reply

    You described my daughter. She developed a fructose intolerance about 2 years ago. Of course we had no idea…..poor kid…..was in the bathroom alot!! We got no help from the doctors. I turned to the internet!!

    She went on an elimination diet, ruled out Lactose intolerance. Then discovered it was Fructose.

    She is 16 and could barely eat anything. I did lots of research and found a workable solution for her. Not a cure, but she can eat more things a teenager normally does.

    Before she eats anything now she takes a Digestive Enzyme (Ensymedica Digest Gold). This has been a lifesaver. Now she can eat some fruit, cookies, high end chocolate (they use sugar) and even have cane sugar soda.

    Her biggest treat is pizza, she can eat it again. She’s eating salad too.

    Our big challenge is eating out. Forget the fast food chains – HFCS everywhere. We did find Panara Bread, she can have about 5 of their sandwiches.

    She still stays away from Corn Syrup and HFCS. She also keeps her consumption of fruit and sugars to a safe level. We read all food labels and I make alot of food, including bread from scratch.

    I don’t know if Digestive Enzymes will work for anyone else, but I wanted to pass on what is helping my daughter. Thanks for a good column.

  • Heidi // February 6, 2009 at 5:41 am | Reply

    I forget to mention this in my previous comment. My daughter just realized toothpaste was making her stomach go ballistic.

    She still has stomach problems from time to time and she is having a devil of a time figuring out what she ate to cause it.

    We didn’t realize that her toothpaste has Sorbital in it. They only list the active ingredients. I called the major toothpaste companies, some are more helpful than others. I found two that don’t have Sorbital. Toms of Maine kids toothpaste “Silly Strawberry” and Arm and Hammer “Peroxicare”.

    Hope this may help someone.

  • Denise // February 6, 2009 at 6:44 am | Reply

    AVT. My child is so fine, until she eats fructose. Then she looks bi-polar. I am not sure if anyone else has this problem. Is my child the only one that reacts like this?

    • Janice J // May 29, 2009 at 8:16 am | Reply

      Hi Denise,

      I just found this message board. My daughter was diagnose as Bipolar and she and our family have gone thru h*ll for years. I researched a lot, suggest to psych dr., endo, etc., thst it could be HFI and was poo-poohed! My daughter has been on an HFI diet for 3 weeks and has had dramatic improvements. We started the diet on our own in order to see what would happen. Our story is so long! I would love to hear from you.

      • avthompson // August 8, 2009 at 9:20 pm

        Hello Janice!

        Sorry about how long it has taken me to get back online! :(

        How old is your daughter? HFI or Hereditary Fructose Intolerance is a serious genetic disorder which – if the subject consumes fructose – can over time cause organ damage and death. If she is over five or six, it probably isn’t HFI or she’d be at death’s door – or so is my understanding. I’m not a doctor of ANY kind and I do not know much about HFI.

        She may, however, have Fructose Malabsorption. This is NOT genetic and will not cause death. This is what I have. Fructmal is also known (primarily in the US) as DFI or Dietary Fructose Intolerance. Many of us in the Fructmal community worldwide are actively trying to push the consistant use of the term “Fructose Malabsorption” and to abandon the DFI term. Our ailment is, from the viewpoint of medical terminology, NOT and “intolerance”. Fructmals tolerate fructose just fine once it is in our bloodstream. We do however have difficultly getting the fructose we eat to absorb into the bloodstream. It is therefore more ACCURATELY termed a “malabsorption”.
        We also want to abandon the DFI term because it is so similar to the HFI term it can cause confusion.

        That said, because HFI is a deathly disease, the strictures for an HFI diet are far more extreme than a Fructmal eating plan. After all, our life isn’t on the line! An HFI diet is fine for a fructmal – it’s just more restrictive than necessary.
        I’m glad she has seen improvements and would love to here from you now that I’m able to be online more!
        :)
        AT

  • Denise // February 6, 2009 at 6:46 am | Reply

    BTW…. My doctor said he has never seen the fructose- course so quickly through a body as my daughters, when he did test. He put her on a medication to kill bad bacteria and then said to do a probiotic. Does this sound right? I think I read on your blog that probiotic is bad.

  • Denise // February 6, 2009 at 6:48 am | Reply

    ONe last comment… I promise! Where the heck do I get a food list of things she *CAN* eat???? I have been searching and searching.

  • Denise // February 6, 2009 at 9:39 am | Reply

    I lied…
    I have another question: Is mik or cheerios a problem for people that can’t handle fructose?

  • Kate // February 6, 2009 at 6:55 pm | Reply

    Hi!
    I spent about six years trying to figure out why I was feeling sick and tired all the time…and last year I found out that I had fructose malabsorption. Since then I have been avoiding fructose – but I had no idea about fructans…this is a big surprise for me. Unfortunately I am also lactose intolerant :( Right now I am very happy to have found out why I continue not to feel 100% but I also feel discouraged because of the huge percentage of food that I can no longer eat!
    If anyone has recipes – wheat free, fructose/fructan free I would be so greatful for the help!
    This site was SO exciting for me to find!

  • Wendy // February 9, 2009 at 12:11 pm | Reply

    Hi. I’m new. I’ve just been diagnosed with the fructmal problem, but I’m missing what seems to be one major symptom. I do not get diariah (sp?), I get constipated??? Could this mean a misdiagnosis or do others have this issue. Also, I hate to bring this up because I haven’t seen anybody else bring it up, but I seem to get an odor or poo, probably from my breath and body. Does anybody else get this and will it go away if I strictly follow the diet? This is new to me and I’m full of questions, but this site has been VERY helpful. Thank you, everybody! Wendy

  • KK // February 11, 2009 at 2:01 pm | Reply

    Thanks for the detailed answers! I keep having to start from Square 1 because I fall off the wheat wagon. I suck.

    I live in a large city in Wisconsin, so I have access to stores like Whole Foods, etc that have a wide selection of gluten-free stuff and bulk items like quinoa and millet.

    During the 6-8 week “washout” period, should I avoid all vegetables too?

    I’d love to know about Cheerios too. I know they have wheat starch in them. One of my biggest annoyances is dry cereal! I love the stuff, but it seems either it has wheat, or if wheat-free, it’s sweetened with fruit juice concentrate.

    Thanks again for all your help!
    Kathy

  • JJ // February 16, 2009 at 1:36 pm | Reply

    Hi,

    Your site has been of great help to me (both your blog and fructmal pages). Keep on posting! Your information helped me to have the courage to override my incompetent doctor and make the appointment for the tests myself. Even with the results in black and white from a leading hospital this dude still refuses to believe this could be a problem. So far me and my medical knowledge being right – 2, my doctor – 0. He keeps sending me for tests I don’t think I need, and lo and behold, they come back negative. When I send myself on referrals to specialists (I have other health problems), I come back with positives or other answers – I knew I should have gone to medical school! He, on the other hand, does everything short of a pat on the head and “there, there dear” since it is pretty clear that he believes it is all in my head, and women are just hysterical or something. I am not quite sure how foul, watery, diarrhea (sorry, too much information) is all in my head or I am just doing it for attention (note to doctor, people don’t like to pay attention to people with DIARRHEA who fart and belch).

    Grrrr. Okay, sorry about the rant, and here is the real reason I am posting.

    I am lucky enough to live in Australia where the dietician Sue Shepherd practices, and I was recently diagnosed by one of her fellow dieticians in her practice (after hydrogen breath tests). It has made a difference, which is great (very reduced amounts of the icky stuff I mentioned above).

    Here is her website, AVT you have probably posted it elsewhere, but here you go http://www.coeliac.com.au/. She specialises in coeliac disease – but she also has a significant interest in fructose malabsorption (she did her PhD on it). This woman is so dedicated to the cause she also developed this absolutely amazing food guide for shopping with fructose malabsorption – heaven! It has pictures, and descriptions of almost every single food on the supermarket shelves possible! For example, she has even gotten down to the detail of which flavours of a certain brand of food are safe (say, ice cream for example) and which are not! She probably got some poor student to do it, but whatever, it is great for me, especially since I am not a great cook, and I like (healthy) easy to prepare foods.

    A word of caution – this is an unbelievably helpful resource for people who live in Australia, but probably not as helpful for people who live elsewhere because she actually lists brand names of products, which are probably different in every country. And even big brand names have different ingredients and formulas in different countries.

    But her cookbooks should be universal and all the ingredients would be easy to find around the world. Note, Australian “tasty” cheese (actually a type, not a brand, yes Australians are weird) should be substituted with an English cheddar or equivalent. You can order some great cookbooks from her website (the ones I have are “Gluten-free Cooking” and Irresistibles for the Irritable”). I am not sure about shipping overseas, you would have to ask her organisation about that.

    Cheers,

    JJ

    P.S. I have no “financial” or promotional interest in the site/organisation, I am just a fellow fructmal reporting on what has worked for me.

  • JJ // February 16, 2009 at 2:12 pm | Reply

    Hi,

    Sorry, me again. Denise, I find too much dairy to be a problem – remember, all adults are lactose intolerant to some degree, because our bodies start to stop producing the enzymes to digest it around age 3 or 4 (a couple of years after we stop breastfeeding). Some cultures (who have had dairy for centuries) have better lactose digestion ability than others (like ones that haven’t traditionally raised dairy cows for centuries). I would still get all the testing done, but in the meantime, think about your ancestors and your family – would they come from a culture with a lot of dairy (usually Northern European) or little dairy?

    I find lactose free milk (usually available at most supermarkets, and definitely health food stores) is an easy switch. And I am okay with pure yogurt (I avoid the ones flavoured with sugary fruit flavours). If you can afford it biodynamic or organic is the way to go, otherwise the cheaper brands tend to beef up their creaminess by adding extra milk solids – extra lactose usually). I would also avoid low fat yogurt products – they usually stick in inulin (BAD for us fructmals) or extra milk solids to keep the creamy texture you get in the natural Greek or thick full fat yogurts. A drizzle of maple syrup is great on top of plain yogurt.

    I am not a doctor/dietician, but I think that AVT would agree with me that Cheerios are a serious problem – because of the wheat in them. If you live near a major health food store, try to find gluten free/wheat free alternatives for a while – there are some great kid-friendly brands out there.

    Denise, again I am not a doctor/dietician, but you may also want to consider following a gluten free/casein free diet. Usually followed by kids with autism/ADHD (I am so NOT saying your daughter has these issues at all), they have been found to relieve some symptoms in kids. Because your daughter is so young, she may not be able to express that the foods you are giving her are making her sick (unintentionally of course, you sound like a great, concerned mom) and so she is having hissy fits.

    I know myself that gluten free macaroni and cheese (KK, you may want to try this) and gluten free cornflakes have been great comfort foods, and very little difference in taste. Note: spelt and kamut are BAD, don’t believe people when they say they are safe. However, gluten free buckwheat pancakes (buckwheat actually has nothing to do with wheat) with maple syrup – yum!

    Cheers,

    JJ

  • JJ // February 16, 2009 at 2:56 pm | Reply

    Sorry, one last comment about Australian recipes. When they say “pumpkin”, they usually mean a squash like butternut or acorn, and when they say squash they usually mean the mini ones you can get. North American pumpkin is very different from the Australian ones – I find it is too bitter for most recipes without sugar (or cream in soup).

    Cheers,

    JJ

  • Karin // March 1, 2009 at 8:12 pm | Reply

    I’m writing in response to reading Denise’s comments about her daughter becoming violent. My son is 13 yrs. old and I have known for several years that there is a connection between him having fructose and his violent episodes. I can’t even explain how out-of-control he gets. I’m not talking about temper tantrums…I’m talking serious violent, aggressive, unbelievable anger and irritability. He has always had difficulty falling asleep and has been on medication to help him sleep since he’s been 5. He is currently on Wellbutrin for depression, but it doesn’t help. I keep pushing the fact that he has a reaction every time he gets ahold of a CapriSun fruit drink or certain kinds of candy, but the doctors I have seen seem to think there’s little to no connection. I am taking him to an pediatric endo tomorrow and insisting on the breath tests. I will update after I hopefully get some results.

    It’s been a struggle and very frustrating for years to get the doctors he’s seen to acknowledge even a possible link. He has seen different psychiatrists and they simply can’t diagnose him, because he only flips out at certain times. He’s not bipolar, ADD, ADHD, ODD, or any other “psychological” diagnosis. I am very careful about what he eats, but he gets candy on the bus, or snacks at friends’ houses and I can’t always control it.

    I’m wondering if any of the adults that have this, have experienced this kind of extreme irritation or agitated behavior. Is it possible that this condition is much more prevalent and may be causing depression and insomnia, mood changes, etc. in lots of people?

  • katherine // March 10, 2009 at 5:21 am | Reply

    Hi,
    Thank you for your excellent and informative site!

    From what I understand, FructoMals don’t need to cut out all fruits, only ones that have a high fructose to glucose ratio.

    Fruits with either glucose in balance with or in excess of fructose are generally tolerated in moderation. These include citrus fruits (grapefruit, lemons etc), berries (blueberries, raspberries etc), ripe bananas, pineapple, kiwi fruit, and passionfruit.

    Fructose malabsorption can also result in a number of key nutrient deficiencies including folic acid and zinc.

    I’ve had great success also with taking l-tryptophan as a supplement (Life Extension).

    Thanks again for your great blog!

  • Low Fructose Diet in Fructose Malabsorption | Current Health Articles 2009 // March 14, 2009 at 8:39 am | Reply

    [...] about health writer A.V. Thompson’s personal experience with fructose malabsorption, ask her questions, and find useful links to [...]

  • avthompson // March 14, 2009 at 11:06 pm | Reply

    Hello Denise and KK!
    Sorry I’ve been off-line for awhile! I am almost at the one month mark of dealing with my first case of tendonitis. Keyboarding has been quite a strain so I’ve been avoiding at as I want to make a strong recovery!

    From what I understand, the ingredients in packaged foods vary widely from place to place. For example, there is no High Fructose Corn Syrup in Coca-Cola here in Canada. Here it is sweetened with plain old sugar.
    I went through all my favourite cereals when I first found out about the wheat aspect of fructmal and I eliminiated Cheerios. I can’t remember exactly why – but it would’ve been for wheat content of some kind. (It also has TSP – y’know, the stuff you use to degrease your walls before you paint? – yeah, that stuff – tri-sodium phosphate…. nothing to do with fructmal though!)
    I have also run into the “hippie-food” issue of everything being sweetened with fruit juice!
    I eat GLUTINO brand Honey Nut cereal
    http://www.glutino.com/content/view/93/111/
    It is sweetened with dehydrated cane juice, and has a little honey. I find it okay in moderation. I also like to make rolled oats.
    I’m not fond of oatmeal, but melt a little butter in a sauce pan, then throw in a handful of dried rolled oats. Keep them constantly moving as they toast to a golden brown – they’ll start to smell like roasted nuts. pour water over them just to cover them and add a pinch of salt. Bring to a boil, then lower to a simmer and DON’T touch them. Kind of like making rice, but without having to cover the pot. By the time the water is gone, the oats should be cooked. They come out like wild rice. I love it!
    Denise – the “killing the bad bacteria” thing – I’m sorry I’m responding so late to this…. doesn’t sound good. First of all, the only thing that kills bacteria is antibiotics. So the doc is talking about antibiotics here.
    Antibiotics don’t just kill “bad” bacteria. There’s no picking and choosing. Antibiotics kill all bacteria. How complete a job they do depends on the dosage and duration.

    There are some gut problems that are treated with antibiotics. I believe many forms of IBS are caused by the bacteria in the gut multiplying totally out of control and the sufferer becomes literally infested with gut bacteria. Antibiotics are used to bring down the population. An alternative is a very specific diet that feeds you with foods that the bacteria cannot draw any nutrients from, thereby reducing their numbers by starving them.

    Ironically, the word “probiotic” just means “bacteria”. Foods that are “probiotic” are foods containing live bacteria. Soooo… the doc’s suggestion is to kill off a bunch of bacteria, then….. consume a bunch of bacteria?
    Huh?

    I have NEVER come across any research to suggest that fructmal is related to an overgrowth of bacteria. Some fructmals have seen positive results by trying to rebalance the specific breeds of intestinal bacteria. This sort of therapy requires a specialized knowledge of the different breeds of organisms, what each one does and how it interacts with the other breeds of bacteria in the gut and how the populations must interact. Particular breeds of organism in exact dosages are taken and the results are medically tracked.
    This is NOT buying mass-produced yoghurt with god-knows-what bacteria in it. It is also NOT just killing off masses of bacteria willy-nilly.
    If the regime your doc is talking about is this sort of precise rebalancing, then that’s one thing…. but the idea that an antibiotic would kill the “bad bacteria” is…. not inspiring confidence.

    I would seriously seek a second opinion on the antibiotics thing. Though it is ONLY ANECDOTAL, many fructmals I have spoken with never had fructmal until an illness forced them to take large doses of antibiotics!
    Sounds like your doc is confusing fructmal with IBS.

    Both of you have inquired about foods that are okay. I want to reiterate that each fructmal must formulate their own personal list – we are all different!

    That said, the only veggies I have a problem with are onions, asparagus, artichokes, and sometimes green and yellow beans – these are, interestingly, the “biggies” in the fructmal world for veg. Sometimes I can have green beans IF they have been commercially frozen.
    The following are often complained about:
    carrots, corn, some varieties of potatoes… the sweet stuff.
    This article:
    http://www.healthhype.com/low-fructose-diet-in-fructose-malabsorption.html
    was done after quite an extensive online survey of fructmals and what foods bothered them. Great list!
    There is no reason to eliminate veggies during the washout period. If you eliminate too much food, you will be undernourished by the time the washout period is through and instead of feeling balanced and healthy you will feel rundown and depleted.

    Hope this has been helpful!
    :)
    Ariana
    ……………………….milk is fine!

  • avthompson // March 14, 2009 at 11:50 pm | Reply

    Wendy,

    Yes – constipation rather than diarrhea is a common variance in fructmal. Many people get this, or a combination of both.
    It is not an indicator of misdiagnosis.

    :)
    Ariana

  • avthompson // March 15, 2009 at 12:03 am | Reply

    Karin,
    due to fructmal’s interference with the body manufacture of serotonin, fructmal is associated with depression.

    Many allergies have behavioural symptoms rather than hives or whatnot. My sister’s allergies have always manifested as shrieking, screaming, wailing, throwing things etc. (She isn’t fructmal, she’s allergic to many colourings and flavourings and preservatives).

    I’va also heard of a multi-vitamin in a remarkably high dosage that seems to do wonders for many people suffering from psychological and emotional problems – almost like their brains are not getting enough nutrients to function.

    I haven’t heard of fructmal per se causing the kinds of emotional reactions you’ve described to those degrees – but my knowledge and experience is not the be-all and end-all! I am learning more all the time! I will say that fructmal seems to hit the young ones harder, and that fructmal likes companion ailments. It’s VERY common for fructmals to also be lactose intolerant, or be allergic to things…. so perhaps the culprit is fructmal AND something else?

    As to foods obtained outside the home, … wow. Kids are kids, eh? I am not a mother myself. I will say, that there are many mothers in the support group I have linked to in a couple of the comments higher on the page. Try joining this group.
    I have noticed – if this helps – that many mothers try and help their kids to draw their own associations between bad foods and their painful GI symptoms. Having the child make the deduction and therefore gain power. This helps the child prefer to say “no” to bad foods because they don’t want them.
    Easy for me to say, I know.

    I hope the group helps!
    :)
    Ariana

  • Jenny // March 21, 2009 at 7:21 pm | Reply

    Some people with Fructmal do also have bacterial overgrowth due to the fructose feeding all those icky bacteria so well. This can be diagnosed with a breath test too. And antibiotics are used to treat this. These poor people may have fructmal and lactose intolerance too and will still need the diet. The antibiotics are just to help the process.

    I have just been diagnosed with fructmal and lactose intolerance. I am lucky to live in Australia and have just been to Sue Shepherd’s fantastic presentation. How great to find a group like this!

  • Marcia // March 24, 2009 at 12:57 pm | Reply

    Does anyone know of a chart of fructan (inlulin) content in foods, a comprehensive chart that lists lots of vegetables, fruits and grains? I’ve been searching online but haven’t found one under fructan or under inulin. Thanks.

  • Paula // April 10, 2009 at 11:57 pm | Reply

    A light has gone off here for me. I have migraines and already knew that HFCS was my primary trigger. After trying probiotics with FOS, I’ve landed here on your blog, and made a SERIOUS connection with what’s been going on with me.

    For the last three weeks or so, I’ve been just ill, stomach, listless, feeling downright horrible, verging on having some of the worst gas and related issues, ever. I stopped taking the probiotics last night, woke up feeling like a new person today.

    And did a search on the probiotic issue … they had FOS. More fructose. + bacteria. It is crystal clear what I’d been doing to myself.

    Anyway, I’ll start with make more dietary modifications in the morning. I can’t wait to start trying this out. I’ll miss wheat, but I won’t miss how I’m feeling now.

    Thanks so much. Your humor and honesty has really helped.

    Paula

  • cecilia // April 14, 2009 at 1:06 am | Reply

    Is Lactobacillus what you term a probiotic, if so I have been swallowing fructose for the last 5 months or so. I have strong feeling that I am fructose intolerant. I have a huge mental problem with avoiding leeks/onions etc, they make food so much more tasty!!! I don’t buy much processed food. But I am having a problem with a ‘bread’. I am gluten intolerant and all other breads seem to be made with whole rice. I have a slight intolerance to yeast, but can tolerate a little every now and again. I feel doomed. I am an elite age group athlete and need carbs in my diet. One of my symptoms of a possible Fructose intolerance is insomnia alongside the IBS type symptoms and fuzzy head and eyes which are linked.

  • Zo // April 19, 2009 at 7:14 am | Reply

    Hi,
    Love your weblog!!
    Just found out I am a fructose malabsorption.
    I went to the store and got some “Whole Grain Organic Quinoa” (gluten free).
    Is it safe for me?
    I’ve heard that I need to avoid all the whole grain products even if it’s gluten free.
    Is it true??

  • Kim // April 20, 2009 at 7:42 am | Reply

    I’ve only discovered that there was such a thing as fructmal very recently. Something about it just clicks. It seems like all the foods I have a problem with are problems for fructmals. One natural doctor I see just says “well, try out the diet and see if it works.” Other doctors don’t have a clue, others say the tests to prove to really prove anything. I’m not 100% though with the diet but I think I am making mistakes. I didn’t realize about apple cider vinegar. Is dijon mustard bad too?

    Also, what you said about antibiotics was interesting. I had thought the antibiotics caused SIBO, but then any doctor I see is clueless. The last GI doctor I had just gave me an RX for tetracycline and sent me on my way. I didn’t take it, but what would make him think to prescribe that antibiotic? He ran no tests and I haven’t seen anywhere that that would be the antibiotic to use for SIBO.

    Now I’m searching for a doctor that will test me for fructmal. I get such smelly gas, that I think I am a methane producer. Would the test be inaccurate then?

    I’m lost.

  • Stuart // April 27, 2009 at 10:04 am | Reply

    Hi AVT,

    Your article is great as well as all the comments and answers you give.

    I was diagnosed by a GI doctor before he did any tests. He just listened to me describe my symptoms and came up with Fructose Malabsorption. He could not test for it in Ontario, because the Ontario government stopped paying for the test a few years ago. As a result, the test is not available.
    He went through with the rest of the GI tests, endoscopy, colonoscopy, cat scan. Everything was negative. Which is a good thing.

    I am also lactose intolerant. As a result, some of the gluten free breads, such as Glutino, are out. I have tried the Kinnick brand of bagels, and they are good, however, they have sugar in them. Is the sugar in these breads less of a problem then the fructans in regular sugar free bread?

    Do you have a list of sweeteners available in Canada that can be used instead of sugar? I noticed that you use Sugar In The Raw. Doesn’t that have fructose in it? Are there any sweeteners or sugar replacements that are pure glucose with no fructose?

    I seem to react to sugar(sucrose) and as a result I have had to stop my daily espresso, since I cannot drink it without sugar.

    I also recently have had to cut out regular potatoes. I used to eat them all the time, but now I can’t.

    Thanks.

  • Mel // April 29, 2009 at 3:44 pm | Reply

    This is a great blog; very helpful. I was diagnosed with IBS about 7 years ago but have had symptoms for about 15 years now. I first heard about FM a few months ago and a lot of bells went off. I’d love to get the hydrogen breath test, but I’m unemployed and live in the U.S., hence no health insurance. I don’t know how much the test costs, but I imagine it’s beyond what I could afford.

    Also, since I don’t currently have a regular doctor and given standard U.S. medical practice, I’m sure I’d also have to go through the time and expense of at least one preliminary appointment before anyone would agree to do the tests. And then of course I’d have no guarantee that whatever doc I picked out of a phone book would have a clue about FM.

    So I’m wondering if there is any way to self-diagnose this. I realize the breath test is the only reliable method, but is there something else I could do that would give me a good idea? For example, maybe doing a short fast and then drinking a lot of pear juice or something else way high on the fructose, and seeing how I react?

    I know I could do the hard-core elimination diet for 4 to 6 weeks, of course, and try to find out that way. But I’ve been so sick lately I don’t know if I can wait that long, and I also feel it will be extremely hard for me to stick with that without knowing if I’m just following another dead end or not (I’ve tried practically everything else). I’m already pretty sure that I’m intolerant of lactose, soy, sorbitol, and all the gas-producing stuff like beans and cruciferous vegetables, so with the additional banned food of the FM diet, this will be really tough.

    Eliminating wheat will be especially tough, since I practically live on that, and I’ve never noticed any direct problems with it. But now that I know that some symptoms may take several days to show up, and given how much I rely on bread products, it could be that I just never noticed a direct connection. I did feel particularly ill after consuming a lot of apple juice a few days ago, so that’s why I’m thinking that doing some kind of fruit “overload” test might give me a better clue, as I don’t normally eat a lot of fruit, but I’m sure I get tons of fructose unwittingly in prepared foods.

    Thanks for reading this–sorry so long. Another quick question: Is wine or hard liquor forbidden on this diet? I couldn’t tell from all the stuff I read online.

    Finally, if anyone knows of a good doctor in the Seattle area who is familiar with FM and would do the breath test, please post the info here. Or if you know of an FM online discussion forum with a lot of U.S. members, that would also be very helpful.

    Thanks again!

    Mel

  • M. Ensunsa // May 1, 2009 at 4:12 pm | Reply

    Hi A.V.,

    Just so you know spelt is a wheat product. It a is actually a species of wheat that was used way way before today’s wheat species. Any celiac friendly or wheat free products should not have spelt as it has gluten. I know as I am allergic to gluten (allergy not celiac disease which is differnt). There are a couple of really good gluten free recipe books that have tips about making gluten free baking mixes. Idon’t have them with me so I will try to get them to you later. Great blog by the way.

    M.E.

  • avthompson // May 4, 2009 at 1:40 pm | Reply

    Hi Zo!

    Yes, quinoa is fine. It contains no fructans! Yay!

    As to avoiding all grains – no! You don’t have to avoid all grains. Quinoa is a grain…. well, I suppose we could get into a very technical discussion about what is a “grain” and what is a “seed”… but we’ll leave those hairs to be split by the scientists!

    Gluten has NOTHING to do with being Fructmal. We have no problem with gluten AT ALL. Go buy a bag of pure gluten and eat it with a spoon… ummm if that kinda thing rings your bell! LOL! Fructose is a sugar comprised of a single molecule, which is how it is in fruit and honey and stuff. It can, however, link together with other fructose molecules to form a chain of fructose molecules with a single glucose molecule at the end. These fructose chains are called “fructans”.
    It’s important to know about fructans because they are NOT classified as “fructose” on a food chart, but our bodies react to them just like fructose. So fructans act as… like secret hidden fructose.

    The reason we can’t have wheat is not because of the gluten, it’s because wheat contains fructan chains. If you look up wheat on a nutrition chart, the chart will say it has no fructose. But that because they’re only looking at single molecule fructose – they don’t count or list the fructan chains. But our bodies will have a reaction to the fructan chains just as badly as single molecule fructose!
    So what has this hidden fructose content known as “fructan-chains” or “fructans”?

    The biggies:

    wheat
    spelt
    kamut
    brown rice
    onions/green onions/leeks
    asparagus
    artichokes

    Lesser evils:

    chives/green part of green onions
    green beans
    rye
    **be careful buying so-called “rye” bread. it is usually just wheat bread with some rye added

    Some people have a problem with the following (but not most people):

    oats
    some varieties of potatoes
    corn
    barley

    As far as I know these are TOTALLY fine:

    quinoa
    millet
    white rice
    amaranth
    buckwheat
    sticky rice ( also called glutinous rice or sweet rice)
    wild rice
    teff

    Everyone is probably tired of hearing this but everyone is different! Some people have more reaction than others to certain things on the list while others have no problem.
    It is up to each of us to compile our own personal “okay” “occasionally” and “never” lists that apply to us only. Obviously, ALL of us are okay with foods that contain no fructose or fructans at all.

    I hope this list is helpful!
    :)
    AVT

  • Zo // May 5, 2009 at 6:39 am | Reply

    Thank You so much for answering me.

    What about sugar substitute?
    I use to use Splenda a lot but looks like lately it’s also hurt my stomach.
    I know I can use Dextrose but trying to avoid it because it contains sugar and I don’t want to gain weight (I’m drinking LOTS of coffee/tea a day).
    Any suggestions?
    And by the way- what about flavored tea? can I have that? (lets say Chamomile/ green tea/ fruit flavor?
    Thanks again!!
    Zo.

  • JJ // May 8, 2009 at 4:42 pm | Reply

    Hi Zo,

    I drink chamomile all the time, no problem. I also find orange (orange peel, rosehips) tea to be fine. I think some fructmals are fine with small amounts of citrus for flavouring, especially the peel, but as AVT says, everyone is different, unfortunately you will just have to experiment.

    Careful with sugar substitutes. Some contain sorbitol (also most sugar free chewing gums), which some fructmals also react to – but hey, you may not react at all. Check out FODMAPs diet info on the web, it may give you some ideas (Fructose is one of these along the spectrum).

    I mentioned an Australian dietician in an earlier posting who works with these types of diets, some of her stuff may be useful for you to check out.

    Cheers,

    JJ

  • JJ // May 8, 2009 at 4:44 pm | Reply

    Actually, sorry, I should mention that sorbitol reaction is not a fructose problem, but some fructmals have an additional sorbitol reaction problem (sorbitol is naturally in peaches, plums, nectarines, etc.).

    Cheers,

    JJ

    • avthompson // August 8, 2009 at 9:24 pm | Reply

      Sorbitol actually inhibits the absorption of Fructose in ALL people. That is why many people, even those without fructmal, get a tummy ache from too much apple juice, etc. Highest levels are, I believe, in apples and pears.
      :)

  • Trix N. // May 12, 2009 at 7:49 am | Reply

    Are there any books that have info about Fruc Mal and a diet to follow? I’m finding contradictory lists online and would love a good book to follow.

    Thanks!

  • John Wood // May 12, 2009 at 9:34 pm | Reply

    Hi Zo,

    I have just been diagnosed with Fructose Malabsorbtion. After 15 years of agonising pains in the stomach. I had my Gall Bladder removed. I had two colonoscopy’s and two endoscopies. I have been on a Somac for over 10 years. Recently having the daily dose doubled to 80mg. Finally I was correctly diagnosed and went on a FODMAP’s diet. All the pains in my stomach cleared up within 24 hours. I just couldn’t believe it would work so quickly. I only wish that they could have diagnosed it before enduring 15 years of agony.

    John

  • Vicky // May 26, 2009 at 12:38 pm | Reply

    Hello to everyone, I have a 5 yr old daughter with a possible fructmal condition, I live in NYC and we can’t seem to find any place or doctor that can administer the Hydrogen Breath Test, sounds ridiculous I know. I have been researching on my own and wonder if anyone has a small child with this condition so that we can compare notes. Any enzymes, or supplements that I can use? She defintely shows some of the symptoms I read about regarding , the tryptophan/serotonin connection, (angry, irritable, hyperactive, not able to concentrate etc.) and it causes problems in school, at times. Doctors did not help so far. Anyone who has any advice I will always be grateful to. Especially any mom with small child like me.

  • JG // June 10, 2009 at 8:51 am | Reply

    how long does it take for the depression and insomnia to fully go away after starting on a fructose free and fructan free diet. im on the end of my second week and fell a little better.

    • avthompson // August 8, 2009 at 9:09 pm | Reply

      Hi JG! Sorry to have taken so long to respond!
      Curse this arm pain! Grrrrrrr…..

      I found the depression was noticably better with a week and after 4 weeks I knew what “normal” people felt like!

      How have you been doing?
      :)

  • Mickey Christensen // July 21, 2009 at 6:37 am | Reply

    Hi – have been diagnosed as fructose intolerant recently and am having a terrible time finding recipes of something decent to eat. internet says no cookbooks available. Also I do have a few receips that call for corn syrup, but the corn syrup in the grocery store has the first ingredient listed as high fructose corn syrup.

    any info on where to get just corn syrup.

    • avthompson // August 8, 2009 at 12:33 am | Reply

      Hello Mickey~

      First off, congrats on finding out that Fructose is a problem! I know it sounds weird to congratulate someone on something like that, but I know what it’s like to NOT know what’s wrong with you!
      Next, we need to iron out some terminology! Terminology in the Fructmal world can REALLY make a difference – especially regarding recipes etc. Were you diagnosed with Hereditary Fructose Intolerance (HFI) or Fructose Malabsorption (also known as DFI or Dietary Fructose Intolerance – though this is a confusing label that we Fructmals are trying to push out of use)?

      When searching for recipes, go to a site like Amazon and use the term “fructose”. That’s often successful. Also look into GLuten-Free cookbooks, as we need to stay away from wheat/spelt/kamut. These recipes will contain some things we can’t have, like brown rice or fruit, but you can then tweak them.

      I would suggest staying away from corn syrup and using something like golden cane syrup. Remember that this is a “high-load” sugar and needs to be used in *moderation*.

      Hope that helps!
      Stay in touch! :)

  • Hannah // August 9, 2009 at 12:47 pm | Reply

    Hi i live in the UK and have fructose malabsorbsion. I have been on the FODMAP diet now for 3 months and have had none of my previous symptoms. I have stuck to it strictly due to the severity of the cramps i get resulting in me fainting (this is a big deterrent and i was at my wits end willing to try anything to get some help) I am feeling very disappointed to day however as i have had my first flare up in ages and don’t know why the only thing i can put it down to is eating lots of brownie (made from dark choc and wheat free flour) and quite a lot of coca cola (as a treat) I have checked the ingredients and in the UK coca cola is made with sugar rather than corn syrup and although the dark choc contains small traces of organic milk powder it is only a trace. I am feeling very confused and dissappointed as thought i’d finally found a solution to my problem can any one help ?
    Hannah x

    • avthompson // August 9, 2009 at 11:19 pm | Reply

      Hello Hannah!

      Coke in Canada is also made with sugar rather than the HFCS apparently used in the US, but Coke is definately a “high-load” product. We can have moderate amounts of sucrose, but you say you had a lot, so….

      Also, please define “wheat-free” flour. Fructmals cannot tolerate spelt and kamut (as they ARE actually forms of wheat). We also cannot have brown rice, and some of us are sensitive to rye, oats, corn and potatoes. Corn flour, potato flour, brown rice flour, spelt – these are often used in wheat-free products.

      Let me know~
      Glad you are largely symptom free now!
      :)

  • Kate // August 9, 2009 at 5:22 pm | Reply

    This is a document that I found online that lists sugar content (the different kinds of sugars) in a lot of different foods, it’s not perfect but it has been very helpful for me.
    http://www.nal.usda.gov/fnic/foodcomp/Data/Classics/index.html

  • avthompson // August 9, 2009 at 11:11 pm | Reply

    Thank you for the link, Kate!

    I think it must be noted that:

    The PDF document on sugars note that the info is old and posted for those who wish to use it for “historical purposes”. This is undoubtedly due to the constantly changing formulations for processed foods. The info should be, I would imagine, still quite accurate for fruits and veg. A cucumber’s a cucumber, eh?

    Also keep in mind, fructan chains (like those in wheat/spelt/kamut) are NOT counted as fructose in tables like these.

    FYI
    :)

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