It is so hard to get him to cooperate with anything now. He is sick of only drinking water, he is sick of his diet limitations and he is sick of me monitoring his toilette visits.

He doesn’t seem to tolerate rice either, seems to constipate, so does millet. He also has trouble with soy. So what am I to do? Right now we have to give him mineral oil everyday, which is not healthy for him at all, and he is still constipated. Help! Are there any other parents out there that live in Washington State and are able to start a support group? I would really love some guidance, no one around here understands this condition and all the other diets for Candida or Intestinal problems seem to go against the guidelines for fructose malabsorption. Please someone have some recipes or guidance.

AV or anybody else, do you have any experience with rice cakes. I eat them but know that they are made from whole rice. But hoped that they are so processed that the wholeness if not a problem. I do have symptoms every now and again but I experiment a lot and as you have said symptoms can be instant or 4 days to manifest themselves completly. The first thing I notice is I don’t sleep. So looking at my rice cakes. I am an elite masters athlete running 30-40 miles a week and am desperate for some more sustaining carbs. I tried millet yesterday, and of course that could have been the trigger for my symptoms. But I hope not.

Could some of you here on this wonderful forum share what you eat for breakfast please.

Here in the UK there is little research of FM done and I am struggling for info and support. I know more than the nutritionists that I have tried to contact.

After a bad night you can all guess how I feel today.

There is a book on the market on Fructose Malabsorption: The Survival Guide”
Debra Ledford; Paperback; $15.99 I believe it explins the condition well and has some recipes in it. I think it is printed in the USA, I have ordered it here in the UK, but it will take a few weeks to reach me for obvious reasons. I will let you all know if I think it is worth the money or not.

BTW how do you prepare your aramanth?

Sorry M-Man I don’t drink beer.

I’m glad you are seeing some improvement! The diet seems a little limited at first, but boredom shall drive you to discover new foods!!

I have found that, after about a year of being on my Fructmal diet, my tolerance for some things is getting better. Giving your body a rest can help a lot. Don’t think of this diet as something you’ll need to be on forever – for a while, yes, but variety is on the horizon, both via new and unusual foods you’ve never tried before and old faves you may one day be able to revisit.

Anytime you have a restricted diet you need to pay close attention to ensuring you’re getting all your nutrients. Macronutrients (protein, carbs, fats), micronutrients (vitamins, minerals, etc), water and fibre are my four guides. I try and keep these four in mind. With wheat/spelt/kamut/brown rice gone, it is very important to compensate with other carbs and keep the fibre level up too. White rice, potatoes with the skins, quinoa, and amaranth are all good. It’s important to keep as many veggies as possible. Try the unusual ones – most greens are safe for most fructmals, kale, swiss chard, bok choy, endive – rhutabegas and turnips are great done in a curry or minced fine and added to something else.

I take a multi, vitamin C, glucosamine/chondroi/MSM, calcium, selenium, oil of oregano, and kelp…. but most of them I would take even if I wasn’t Fructmal.

Thanks for the link…. your quote sounds very intriguing, but I can’t seem to log into this site. Is anyone else able to log on? My sweetie just bult me a new computer and this is my first day on it – might be my machine.

The reduction of fructmal reaction is very interesting! I am a little hesitant since my problems began with antibiotics – but that’s just me. I have heard of a diet, very restrictive but only meant as a temporary measure, that helps those with bacterial overgrowth by starving the bacteria to reduce their numbers. If overgrowth was determined to be the issue, I think I would gravitate toward that, but again…. personal bias.

Thank you for the link… I’ll talk to my DH about helping me get on it!

Sorry to be so long answering – tendonitis flare-up after “power gardening” to get everything ready for winter!

I don’t know about Polysorbate 80… perhaps another reader?… I found my bouts of constipation are related to my diet. Is he getting plenty of fibre from his food? If he can tolerate potatoes, the skins are a great source of fibre. I scrub the taters well before peeling, then once the naked potatoes are in the boiling water I minced the skins up very fine and add them to the main course…. chili, pasta sauce, stir-fry… once they’re cooked up there sort of disappear!

One thing I have heard with regards to fibre products is to watch the labels EVERYTIME you purchase. Apparently the companies like to change their ingredients with… err… regularity. hehehe.

Someone’s gotta respond…. Canadians are never far from beer! hehehe…

Wow! Lots of good information here. After several years of suffering I was finally diagnosed with FructMal 3 years ago. It took me 2 1/2 years to finally get to a point where I felt pretty good. Seems nutritionists have just so much knowledge. I gave up fruit, most veges, all sugar stuff, but still felt rotton until I realized that I had to give up whole wheat. The results were almost immediate. Now days, my diet is very limited, I seem to be sensitive to so many things, but I’ve finally managed to gain back 4 of the 20 pounds I lost. My diet is boring, but it works. Your points about depression are very interesting. After I finally got away from fructose and it’s buddies, I was able to concentrate again. Read books and actually remember what I’d read 5 minutes later!
So much for babbling. My question is, what types of suppliments do others take? I take a multivitamin, calcium and D, but still feel tired and wonder what I am missing. Any suggestions?
Thanks for listening!
E

Here’s one study I found:

Abnormal breath tests to lactose, fructose and sorbitol in irritable bowel syndrome may be explained by small intestinal bacterial overgrowth

http://www3.interscience.wiley.com/journal/118696419/abstract?CRETRY=1&SRETRY=0

When the researchers treated the small intestinal bacterial overgrowth (SIBO) with antibiotics it “caused a significant reduction in lactose, fructose and sorbitol breath tests positivity…”

Therefore, it is possible that some people who believe they are suffering from fructose malabsorbtion may actually be suffering from SIBO. In theory, based on that study, they could eradicate the overgrowth with antibiotics and no longer test positive for fructose malabsorbtion.

Food for thought.